February 16, 2010

12 Months


At their 12 month well-baby check up:
Charlie weighs 16 lbs, 8 oz; is 28 inches long; with a 18.25 inch head circumference.
Ambrose weighs 14 lbs, 11 oz; is 28.25 inches long; with a 17 inch head circumference.
Their length is average for their gestational age (9 months), but Charlie weighs about like an average 5-6 month old, and Ambrose a 3-4 month old. These low weights are not a cause for concern however, because their particular growth curves are good.


February 08, 2010

Happy 1st Birthday, Charlie and Ambrose!


What a difference a year makes!



click to view birthday party slideshow:
birthday




One year! How soon it has come! Visiting St Joseph's Hospital every day for nearly 7 months made time seem to crawl. But ever since the boys came home we've been speeding through the days and months. Today I had a chance to look back over the past year of photos. I got very teary remembering the first hour of the boys' lives. Everything was happening so quickly. A team of nurses and doctors were surrounding Ambrose. I had to stand off to the side observing, without any understanding of the severity of the moment. I remember the doctor telling me that it wasn't looking good for Ambrose. I asked him to let me know when enough was enough, when there wasn't anything left to do without doing more harm to our little boy. As I said that, he said that at that moment they were doing the last possible thing they could do. Miraculously, that little boy pulled through. I still have a hard time looking at the pictures of Ambrose those first few weeks of life. They are hard pictures to see. A whithered little man with a million wires connected to him and a tube down his throat. I was really at peace when Fr. Muir was able to come to the hospital and baptize the boys within the first few hours of life.

The other day Gina and I were watching an episode of the Duggars and it was about their little preemie. It brought all the emotions back again and I couldn't bear to watch it. I even had to leave the room for a minute. I was really surprised at how sensitive I've become to seeing sick little babies. (That probably shouldn't be a surprise.)

These past couple of months we've seen great changes in our boys. After the spica cast, Ambrose is now in a hip abduction brace. He has it off for one hour a day. He is now a fan of rolling over. The problem is that he always seems to get one arm stuck under him. He lifts himself up with his arms and shows off his chest. He wants to get those knees up, but is still too weak. Charlie is a real showoff these days. He will crawl after everything that he knows he shouldn't touch. One day he pulled out Ambrose's feeding tube and started to drink the milk that was pumping out. Another day he'll pull Ambrose's nasal cannula and force his little head from side to side! He also likes to climb on Ambrose, but Ambrose doesn't seem to mind. He just stares and laughs. Recently, Ambrose has shown interest in eating by mouth. If you remember, he had an oral aversion for quite some time. He would also throw up after every feed. Not anymore. Possibly due to peer pressure, he now sits at the table with us and will open his mouth for food. And if you hadn't already heard, Gina switched him off formula/milk and put him on goat's milk. He no longer throw's up after his feeds. It's amazing! The GI specialists don't like the switch, but they haven't come up with anything better. You can see in Ambrose's eyes how happy he is now. There's more of a sparkle. Charlie, on the other hand, is a real hardcore eater. He will let you know if you're not feeding him fast enough. He squeals if you aren't moving at his pace. He's the cutest little boy and he always has such a serious look. And let's not forget the finger in the mouth! Not the thumb, but he prefers his index!

We are so grateful for all the prayers that we've received over this past year. The outreach was amazing. We received so many wonderful meals this past year from generous souls. The support from our friends and family, from Church groups, strangers across the country and abroad, has really humbled us and we've counted our blessings many times. God really has placed the best possible people in our lives. I wish that we could give back to everyone as much as has been given to us, but we trust that each will be greatly repaid in heaven. One thing that has made our lives a little nicer has been our move to a bigger home. We were blessed to purchase this home a few months back and it's allowed our boys more room to run and play. The commute to work and back isn't fun, but it gives us a chance to spend time with John Paul. What an amazing kid!

Lastly, none of the progress with Ambrose would have occured if it wasn't for Gina. She's a very special woman. She deserves all of the earthly credit for keeping our home and family together. I know how difficult it's been for her this past year, but somehow she keeps moving forward day after day. She's shed many tears over the boys...all of them. She is the one pushing the doctors for more help with Ambrose, pushing herself at all hours of the night, going back-and-forth to appointments after work, trying to do God's will in all things, and trying to maintain a marriage. She is the real hero. I love her very much and appreciate all the work she does for our family. I am honored to be her husband. I'm sure you are honored to be her friend/family/coworker, too. Let's ask Our Lady to protect our sweet Gina and that Our Lord strenghen her to fulfill her vocation faithfully.

God bless you.

Ryan

January 03, 2010

Happy New Year, Indeed!

John Paul's CA trip





Well, Ambrose is out of the spica cast and into a Wheaton brace, which allows his knees and ankles to move but keeps his hips stabilized. We are all much happier now that he can bathe and be diapered and sit in a bouncy chair and high chair.

Several weeks ago we changed his enteral feeds over to goat's milk. Before that he was taking two different prescription drugs for reflux and was still throwing up just about every feed. We tried several types of hypoallergenic formulas, and when we realized virtually all of them are dairy-based, we thought it wouldn't hurt to try the goat's milk (Mommy's milk wasn't working for him either by the way - probably because Mommy drinks cow's milk).

Now he keeps everything down, has good healthy stool (makes his Mommy so proud), is sleeping better, gaining weight, doing long division, and speaking Russian. So we fired his worthless GI specialist and took him off the reflux meds and he's as happy as we've ever seen him. And I don't think it is a coincidence that he is now interested in table food (as you can see from the picture). We feed the twins together and facing each other so Ambrose can watch Charlie and learn to eat from a professional. The only problem is the little hog protests when we feed Ambrose in front of him.

December 29, 2009

Merry Christmas!





Click on the picture to view the album:
Christmas 09


Ryan and John Paul are in Southern California this week visiting the Norbertines and going to Knotts Berry Farm and Disneyland with frater Benedict. Josef and Mommy are hanging out at home playing with all our spoils from Christmas. Charlie sprouted a tooth and Ambrose is going to sprout some legs on Thursday (12/31) when he's liberated from his spica cast. Stay tuned...

December 19, 2009

December 16, 2009

We Survived a Year

Today marks the anniversary of the beginning of our ordeal with the twins. It was one year ago when, crawling into bed, I felt my water break and was overcome with dread. The little guys were only 20 weeks gestation (half-baked) when little Ambrose somehow managed to break his little bag and spill all his water. No one expected them to survive that night, or the 8 weeks until they delivered, or the 10 months since then! What a horrible, wonderful year it has been. And we have all lived to tell about it.

10 months

christmas pictures

Check out our photo albums by cliking the links above, then click "slide show"

Charlie is crawling now. We'll try to catch it on film to prove it.

Ambrose will be liberated from his spica cast December 31.

The big boys are looking forward to Christmas, which we will be hosting in our new home.

Ryan has been out of town for work for the past two weeks, but we'll all have the next two weeks off together.